- However, yesterday two things happened; I finished reading “The Spark” by Kristine Barnett ( the true story of raising a family & changing a community, with their autistic son at the centre of the story – don’t want to give anything away!)
- My Doctor asked that if I could choose anything to make things better & I answered “ Get away from everything for 8 weeks & not have to think”
I spent the whole evening & most of the night mulling these to things over with the feeling that, in some way, these two things were a sign, and I want to grab that sign with both hands & see where it takes us.
So…one small step at a time has never been my style – it’s time for a total life makeover, not just for me but for my family without whom, I wouldn’t want to go on.
- We have spent enough time inside a bubble; wrestling autism for our sons – aba therapy, speech therapy, one-to-one school support
- trailing around therapy after therapy for cerebral palsy
- being held prisoner in the house by the arthritis,
- loosing time together through hospital admissions
- not treating our sons ADD because we cant afford the meds & watching him slip back in school
- not taking our own meds because we have no money & the food bank isn’t open ‘till Wednesday
This is just a snap shot & I’m sick of it.
I’m sick of living with illness, physical & mental and not being able to afford to treat it. I’m sick of worrying that we can’t afford to take the kids to the dentist, or to get them new glasses.
But most of all I’m sick of the constant feeling that I am failing them. You only have one childhood & it should be filled with wonder, excitement & exploration. You should be able to feed your passion for knowledge and fall into bed at the end of the day with a smile on your face and dream of the new things you discovered today. That is how you should spend your childhood and that is what I’m going to dedicate the next few months too.